Ever since I was old enough to form coherent sentences, I have been on a quest for information.
I want to know why radio stations begin with the letters K or W. I want to know why a negative exponent really means the inverse and why the distributive property does not work with division. I want to know why I get a stronger wireless signal while standing precisely here in my bedroom, while stepping only three steps away in any direction decreases the signal significantly.
This burning need to KNOW was the root of my school day stresses a hundred years ago, particularly in math class. When I didn’t understand something, frustration oozed out of my pores, and, in some classes, I stayed on the verge of tears all year long. (I suspect this may have something to do with the behind-my-back nickname of “Emo” in high school.) I wrestled with new topics until I mastered them. Usually about a third of the way into a new course, something would “click” in my head, and I would begin to see this new knowledge and get to a point where I could do something with it. In fact, I often ended up tutoring my fellow students as they watched me emerge from my crying cocoon into someone who finally KNEW.
And yet there are some questions that just do not have an answer…like this mystery that is ME. I want to KNOW the name of the autoimmune disease that is attacking my muscles and nerves, but there is no source of information available. Naming my mountain seems to be the first step in telling it in faith to move. But my mountain has no name known to man. All my doctor can say is
“Yes, there is something that is damaging your muscles and your nerves. It is mild, but it needs to treated. Sometimes the immune system just needs a reset.”
Although I am relieved to hear that my neuromuscular problems are mild, I have a burning desire to know its name. I’m frustrated to tears that nobody seems to know…not the neurologist, not the rheumatologist, not the hematologist, not the internist. They all say, “something is wrong.” But none of them can tell me the definition of “something.”
Despite not knowing what “it” is, the doctor wants to treat the symptoms in order to “reset” my immune system. She tells me that if I don’t take the medicine, my symptoms are liable to get worse over time. In addition, she believes there are no “natural” alternatives to this medicine she wants me to take. According to Dr. G., if “natural medicines” worked, no one would get sick.
Now, I am not a student of formal logic, but my fourteen year old daughter is. I asked her to create a dilemma from the doctor’s statement about natural alternatives and then tell me why it logically does not make sense. (Anything to avoid taking prednisone!)
If natural medicines worked, no people would get sick. Some people get sick. Therefore, natural medicines do not work.
The error in logic here is that not all people take natural medicines. In fact, it could be said that those people who do take natural medicines do not get sick and therefore do not spend their time waiting around in neurologists’ offices!
So what’s a girl who wants to KNOW to do at a time such as this? I’ll do what I’ve always done when I am wresting with a topic. I’ve already cried a little in frustration — and there’s more where that came from, probably. I’ve asked the Lord to lead me and will focus on scriptures about healing rather than on drug.com lists of side effects. I’ll research natural alternatives and give some of them a try. And since my illness doesn’t have a name, I’m going to name it.
Sensorimotor-weird-autoimmune-disease…spells SWAD. Or autoimmune-disease-of-unspecified-origin….spells ADUO. Neuropathic-autoimmune-myopathy…spells NAM. Kind of like those ROUSes, in the Princess Bride. Nobody knew what those were, either.
Do you have an idea for a name for my illness? Go ahead, name it!
3 thoughts on “The ROUS, in me”
You might have CFS. Chronic Fatigue Syndrome. I found a doctor who knew the only way way to treat it was via natural! And I found through the literature, she was right. Watch this video and see what you think. Also, look up CFS, and see what you think. Let me know, as I am very interested if this is your Mystery Illness!
No ideas for you, but just sending hugs. Wish life was easier. (((hugs)))
Just coming to your site for the first time from a link on the CC fb page. I could have written your introvert post! http://www.welltellme.com is a natural health forum that has helped me tremendously through the years. The ladies there may not be able to name the ROUS, but they are all about strengthening the immune system. There are several threads on prednisone alternatives and ways to get off of prednisone. It started as a Christian homeschool forum for those interested in natural health, so, though it has grown outside of those boundaries, you will find like minded mamas over there. Blessings to you!